Paediatric palliative care

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23.1
Averil Tam
Flashcards by Averil Tam, updated more than 1 year ago
Averil Tam
Created by Averil Tam over 6 years ago
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Question Answer
1. What is paediatric palliative care? A. Caring for dying children B. Care provided for children with cancer only C. Care provided to any child and their family with a life-limited diagnosis until end of life D. Providing psychological support and respite only C. Care that is given to any child and their family from a life-limited diagnosis to end-of-life. It involves providing supports in physical (symptom management), emotional/psychosocial (whole family care and respite), spiritual (exploring meaning for this family, bereavement care).
2. What is essential to providing good palliative care? A. Good communication B. Early referral C. Good symptom management D. Providing holistic care E. Avoid talking about death A, B, C and D
3. What symptoms are the most troubling to children and young people? A. Lack of energy B. Pain C. Nausea D. Feeling sad; feeling nervous; worrying; feeling irritable E. Haemoptysis A, B, C and D. Also cough and loss of appetite.
4. What other key issues do children and their care-givers confront? A. A child’s understanding of death B. Bereavement concerns C. Isolation D. Fragmentation of care E. Access to equipment A, B, C, D and E. It is important to connect with the child’s (and their family’s) understanding of death. A child’s understanding of death is related to their developmental stage and may be unique. Bereavement may be very long lasting; high incidence of emotional disturbance in one family member or more. Siblings require special support; may seem indifferent as their way to cope. Most children do understand how serious their illness is. Care is often fragmented because most of this occurs in tertiary centres which can be far from home. It is important that care is offered closer to home with the necessary community supports. Families are often socially isolated and may have financial stress. Access to the right equipment can be challenging as well.
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